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Epileptic seizure
On Monday I had to walk to a table four meters away from me. The nurse grabbed me, but after 2 meters I stood still, my legs refused and I was shaking on my legs. A second nurse grabbed me and both carried me to the table, there I had to sit for 15 minutes. I wanted to go back to bed, I was exhausted of walking those 2 meters, but I had to stay in the chair. In the room was another nurse who said that they had to watch that I didn’t fell with my head to the wall. I have said several times that I had to go to bed, but I had to stay in the chair and then they walked away. Because my feeling said I had to lie down I pushed the button but no nurse came. The chair stood facing the bed of my neighbour, so I thought I grab her bed, pull me up and shuffle to my bed. As I wanted to pull me up, my legs gave away and I fell down on the floor with my head. My neighbour yelled for help and two nurses grabbed me and lay me on bed. Then I had a sort of epileptic seizure for an hour; my body shaked and my limbs went every way, I even kicked and slapped myself a few bruises. During this seizure no one came to look at me. My neighbour attended a nurse (who was in our room) of my shocking body, she went for a physio therapist. He told me to open my eyes and say something, but of course I couldn’t. According to him everything was okay and he left the room while I was still having a seizure.

No food
After an hour the seizure finally stopped and then I was paralysed for about 6 hours. During that time nobody came to check me. They did bring my food, pulled my legs beside the bed, put some pillows in my back and left. Of course I fell aside because of the paralysis, my legs still hanging outside my bed. After a half hour they came back for the food, they asked if I haven’t eaten but before I could answer they had already left the room. I estimated that after 2 hours I could finally move my left arm a bit and so I pulled at my trousers till I had my legs in bed. When I am paralysed I can’t speak, so I couldn’t ask for help. Because of all this I couldn’t eat from Friday afternoon till Wednesday and I couldn’t drink much, just because I couldn’t swallow anymore, those muscles were too tired. The only thing the nurses did was checking how much fluid I got and this was too less but they didn’t do anything about it. On Thursday I could swallow a bit of poorage.

Pain
The neurologist told me that I don’t have any pain and so I didn’t get any painkillers. Well I did get naproxen, but this didn't do anything. As if he feels whether I have pain or not.

Snow
Friday morning they tapped some spinal fluid to check and Saturday after 10 days I finally could go home, of course all the test were okay.
On Saturday it had snowed a bit, my friend helped me in the wheelchair and drove me through the snow, I even walked two tiny little steps through the snow, I really enjoyed it. Then I collapsed and haven’t walked anymore and couldn’t move myself in the wheelchair. I got worse and worse, every time I thought worse then this is not possible but still I got worse.

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