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Well, yesterday 9 December I have had the hearing by telephone with my health insurance about the daisy-player. It appears that when they listen to their feeling they think I should get a daisy-player. But if they check the rules they may not give me a daisy-player because I have no visual handicap, no dyslexia and no physical handicap. The government has said that you must have 1 of those 3 things before you will get a daisy-player. So it now depends weather they play it by the rules or if they listen to their feeling. I suspect they will play it by the rules, at least that’s the feeling I had during and after the hearing.
They did however understand that the rules of the government is no good to many people like me who still need a daisy-player. They are now collecting story’s with which they will go to the government to show that their rules should be less tough.
Of course I think this is a very good idea. Also because this could mean that if I now don’t get the daisy-player, I can try it again next year and maybe then it will be approved because the rules are less tough.
Of course I am pissed off it they don’t approve the daisy-player, but I still have about 30 books on audio tape so I can go on for now (a half year or so) and who knows what plays then.

Overall I have a good feeling about the hearing.
It’s nice to know that as regards to feelings they think I have a right to get a daisy-player, but that it is the rules why they disapproved. For me this feels a bit as if they believe me that I am that sick and that I don’t imagine stuff or that it is between my ears. Yes it’s a nice feeling. I hope I could explain well enough what I meant. In 2-3 weeks I will get their decision.

Meanwhile I also know more about the pgb-examination, because end this month the contract is expired. Beginning of November I had called RIO for an examination, but they didn’t know anything about it. It appeared that in their computer was still the contract I objected to last year. April 2002 I had asked for an early examination, because I hadn’t enough with the 7 hours of care… I was too sick and needed more hours. They rejected this, they even took in some hours!
Of course I objected to this. Just before Christmas I got a phone call of the care-office. They found it a very tough case and so I could decide; or just now before the holidays an examination by another RIO and nothing could be done against their decision or going on with the old contract of 22 hours pgb a week. I choose the last option. This contract would actually end in April 2003, but due to their mistake it became December 2003… so I got 8 months delay of execution. But now it’s time and so I need to be examined again. Because RIO didn’t know anything about all this we first had to contact the care-office again and then RIO had to see if the examination could be by phone or in person. They choose for the last option. Tuesday 16 December a woman from RIO will come for the examination. My spd-consulent will also be there. I asked him this and he had also said this as we were working on the appeal. I have to say that it reassures me that he will be there too to help me if necessary. But I still don’t look forward to it considering my previous experience and all those cut backs from the government nowadays. If you consider that I am not that sick anymore as I were last year as I asked for more hours and that they even took me away some hours, I am afraid that I will get nothing at all this time or so little that I can’t manage.
But well it is no point to think and stress about all this upfront… I will see when it is time. Who lives then who cares then… or not?

December 2003 part 1

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