Back

Meanwhile this whole thing has escalated. I have been member from a maine coon club for more than a year and with much fun, I thought it were my friends. The concerning cattery however is also member and because I don’t like it there anymore I cancelled my membership with a short message (unfortunately I have to unsubscribe because of what has happened connecting to a kitten… a some of you will know what it is about. That person has hurt me so much with her reason of rejection (the severity of my illness) that I got a pretty bump of it (mentally and physically). That’s why I can’t go on here doing as if nothing has happened after all this and so I will unsubscribe. I really pity it, because I always were happy being her and always found it pleasant but unfortunately… the whole club is messed up due to this. I hope everyone will be okay and who knows I will hear from some of you). After that the one from the cattery apparently did her version of the story (of course all mixed up) and then everyone started blaming me and calling me names with stuff like that I am childish, that I want attention, that I always get what I want due to my illness, that people with diseases like ME or FM always attention seekers are etc. Well they can keep calling names, that doesn’t hurt, what I don’t like however is that I get threats through private-mail and that someone keeps writing the same threat in my guestbook (luckily I can remove it). According to the private-mails and the threats in my guestbook it appears that another cattery has also denied me a kitten because of my illness (they gave me the reason that they wanted to keep her themselves). This cattery by the way is also a member of that maine coon club… so it’s a pretty discriminating club of catteries there.

Luckily I can meanwhile laugh with this childish-stuff of them and mentally it doesn’t do me anything anymore, physically however is another story; my body reacts as if it is being threatened and so I have problems with a palpitations, irregular heartbeat, very nauseous, dizzy, headache, more pain and of course extreme exhaustion. At the moment I live on adrenaline, but as soon as I am out of it I will definitely severely crash… at least my body feels this way.

The reason why I put all this on my website is that it has a big impact on my life with ME and considering this website is about my life with ME…

I have started with L-carnitine again since Tuesday 30 March. I have already used this back in 2002 at advice of dr. Tisscher. After a year however I started reacting allergic to it. I have tried it afterwards a couple of times, but I kept reacting adversely to it.
Via Willy and his forum I started now with L-carnitine from the firm Sigma Tau. Because it is in injection-form it is pure and only L-carnitine, so without any additives. After inquiry by Willy it appeared that I can put it with my water. That Tuesday I immediately felt more energy and so I started doing more… with the result that I had a relapse for a week.
I must now keep doing the same as normally (not less and not more), so that my body can use the extra energy to improve but boy is that hard… I can’t help it but as soon as I have a bit more energy I start doing things. Nevertheless it’s important not to do this and so I try to keep this in mind.

I still haven’t heard anything from my health insurance about the voice amplifier.
The hearing of the pgb-decision of RIO is April 19.
Both will be continued…

March 2004 part 3

Next

Sitemap