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After 40 minutes Henk carried me back to the Van and we drove to the laboratory for spending blood for tests. Meanwhile I was so tired that I couldn’t keep my eyes open and so I have slept a bit. At the lab was plenty of parking space, so I could go in my electric wheelchair and Henk didn’t had to carry me again. The lab was also upstairs, but here there was an elevator. The building was very good accessible for my electric wheelchair. Here they took several tubes of blood and I also did get 1 small jar for faeces, 1 small jar for morning urine,1 big jar with ice vinegar in it (this smelt terrible) and 1 small jar for a sample of the content of the big one. The big jar is for 24 hour urine except for the morning urine, then you have to shake with it real good and then poor a bit in the small jar. These 3 small jars can be sent to the lab in an envelope. After half an hour we could leave again, unfortunately there was smoked in the elevator in the meantime… boy, that really stinks. Next to the lab is MacDonald’s, it isn’t healthy, but I thought that I had deserved it. So we drove through the MacDrive and enjoyed the meal in the car. A bit later our stomach ached from that mess. As we arrived home I was totally exhausted, feverish and shaky… I didn’t know how fast I had to reach my bed.
Since then it has been 2 weeks and I am still not at the level of before the appointment, I also crash regularly a day and I ache a lot.
I also probably have had food poisoning from MacDonald’s, which lasted about 2 weeks before my intestines and stomach reacted a bit normal again to food. Because of this I couldn’t eat almost nothing (at most 1 slice of bread) and so I will have lost some pounds again.
Wednesday, the 20th of February at 12.30 hours I have to go back for the test results and then eventually there will follow more (blood)tests…
2/10/2002: I honestly have to confess that I don’t like it to go to Maastricht again the 20th. I got worse since the last time and that time it was already heavy. I actually go over my limits by going there, but I hope it will get me some improvement and that I don’t do it for nothing, I have already tried so much what didn’t help and was for nothing. I hope I may start with the acclydine and that it helps even if it is just a bit, so that I can cross-stitch again or sometimes go out with my electric wheelchair or have visitors or make phone calls. Actually it is still much what I want. But I really look up against the rite and then especially about how I will feel afterwards. At this moment I can’t take much more because of unbearable pain and because of that I’m a bit depressive… so I don’t know if I can hang on and the thought that I maybe have to go again in March makes me shiver. But I mustn’t think ahead, instead I have to life day by day, this is sometimes really hard.
02/20/2002: Henk has called dr. van Montfort this morning with the question if we could do the consult by telephone, because I am still recovering from January the 16th. After some discussion it was arranged that dr. van Montfort would call us at 12.30 hours. And yes, at 12.30 hours the telephone rang.
They had discovered some things which were very wrong:
my fat metabolism and hormone balance(correct English?) are completely down. This for example means that everything I eat my body doesn’t take in, probably due to an allergy. So there is gonna be an extensive allergy-test. Dr. van Montfort sends a tube so that my gp can take blood and then Henk has to bring it to Maastricht immediately. The blood has to be in the lab in Germany within 24 hours. Dr. van Montfort then takes care for it that it arrives in Germany in the lab. In this lab they test for the allergy types 3 and 4 and in America they test type 5. These tests can not be done here in the Netherlands (yet). In about 2-3 months the lab here in the Netherlands will be ready to test for allergies in the American way and then eventually my blood will be tested also for allergy type 5.
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