On Tuesday 8 October dr. Tisscher called me, he had the result of the genetic research... it appears that CYP 2D6 doesn't work the way it should, this means that my body can't detoxify well. That 2D6 is necessary to discharge certain chemicals. These chemicals are used in certain foods and medications. My pg and I will get a list of medications, which I may not use or only seldom.
I was surprised that something came out of this research. I don't mind it, although there is (still) nothing to do about it. But now that I know this I can bear this in mind and now we also have another little piece of the puzzle. Who knows maybe I will start feeling better little by little due to this piece; it will cost my body less energy if I leave away what my body can't discharge.
Because the magnesium chewing tablets still don't really work for me being so cold I get a magnesium IV... I am curious if this will work. I do hope so, because I wear my winter-pajamas already since July and the heating is on 24ºC. I also use my electric blanket now for over a week on level 3 (I have 4 levels). If it were up to me I had used the electric blanket earlier, but my old one didn't work anymore and I hadn't bought a new one yet. I have thought long if I would buy an electric blanket, because I can't stand electricity and electrical things. However I am glad that I did, because I now have it finally warm in my bed. To 'ease' the electricity a bit I have the blanket between 2 big towels in my bed. Around 21.00 hrs the blanket is turned on and as we go to bed around 23.00 hrs the blanket will be pulled out of my bed. This way I don't have much difficulty with the bed being statically. Henk does want to warm my bed for me, but when I then lay in my bed it is cold again within 5 minutes because it just takes hours before my body can heat up my bed. So well, give me my electric blanket... since I use it I notice that I also sleep better.
Luckily my sore throat and flu-like feeling are almost over, so I had physiotherapy again this week... the physiotherapist also noticed that I have a relapse due to this. I am luckily far-away from being as bad as I was in July, so don't worry... no, I actually even feel quite well and it appears as if I am slowly improving (I have now an interruption due to the laryngitis/flu).
Yesterday, Monday 11 November, I had an appointment with dr. Tisscher.
I had considerable trouble with the odours (exhaust fumes on the road and perfume and odours from the renovation there), so the whole time I had my nose in my shawl. I have ordered a nice green mask, but it's not in yet.
I finally have the results of the morfine test and it appears that my body makes too less morphine. The result was 13,0 while the most other pain-patients that visit dr. Tisscher have around 20-30. So dr. Tisscher said that I had to become a junkie. He said that I, regarding my low morphine level, may take up to 400mg tramadol a day. As I said that my gp had said that I may not use more dan 150mg a day dr. Tisscher said 'that's easy to say for people who don't have that much pain and whose morphine levels are normal, but pain costs a lot of energy so you have to take more tramadol'. He also wasn't surprised that I couldn't lessen the intake of tramadol. So this is another piece of the puzzle.