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I will wait a bit with trying the new meds, because I got a small tube from Lia Metz from MEdivera for some urine for a HPU test. I had filled in a questionnaire from her and the result was that I have a great chance that I also have HPU. (HPU belongs to the porphyry diseases. At http://www.hputest.nl/english.htm you can find more information and also a questionnaire.)

I am very cold since Thursday night and yesterday, Friday 22 November it was even worse. This morning I realized why I have it so cold... to get a better result from the HPU test I have to quite a few days with my supplements (I can't do without painkillers) and so I stopped taking my supplements (except the painkillers) since Wednesday/Thursday. So it appears that the magnesium helps against the cold!

Thursday 28 November I have tried the new tablets nalorex... and it stayed with trying. I have tried only a quarter of a tablet, but I knew it real soon.
I got more pain in my muscles and joints, stings in my muscles and joints, headache, extremely tired, very thirsty, freezing cold, dizzy and I felt really weird and restless. Despite being extremely tired of the tablets I wasn't able to lay or sit still, because I also were very restless of those tablets. All complaints lasted a couple of hours before they finally got a bit less. But the complaints like pain, tiredness and peeing a lot lasted several days... so I didn't slept much. I even have used more tramadol because of the pain while the intention of taking nalorex was that I would have less pain... not. For me no more nalorex.

Because dr. Tisscher advised me to increase the dosage of tramadol I am doing this right now. At this moment I use 4 tramadol a day; 2 in the morning and 2 in the evening... this way I don't have to set the alarm to wake me up for taking my tablets. I notice that besides less pain my head also is clearer. Next week I want to increase the dosage to 5 tramadol. If this appears te be too much, that I will get dopey for example, then of course I will go back to 4. I am curious how this will go.

I have the result of the HPU test; the value that is being tested is 0.96 nmol/l.
With this value I fall in the categorie 'HPU present; carrier', this means that I don't really have HPU, but that the complaints can be present and that I can give HPU to my children. Eventually I could use medicines like depyrrol (child), however I am not sure yet if I am going to use it... at last I am with 2 specialist and I already get medicines from them.

This was the last update for this year, but I will go on next year of course... so please come back. I wish you a Merry Christmas and a Happy New Year.

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