Back

I clearly notice a difference the first 4 days after the injection. A couple of hours after the injection the exhaustion is less, the tingling in my legs and arms decrease and I feel my legs a bit better. During the following days it becomes better and better and I then also sleep a bit better. Also my head then works a bit better again. After about 3-4 days the positive effect decreases again and my symptoms become worse again, so more exhausted, more pain, tingling, bad feeling in my legs, harder to sleep and my head is again worse. A week after the injection I am again just about fully back to bed confined because of the exhaustion and a couple of days later I also need my wheelchair again in the house to go to the toilet for example. The tingling starts in my feet and fingers and moves slowly up and up till it finally is in whole my legs and arms (about 10 days after the B12-injections). By that time walking gets harder and harder and also the feeling in my legs is really worse. Actually today I should get another B12-shot, but because I felt so sick I took it yesterday and indeed a couple of hours later I was feeling better and also the tingling got a bit less. Today I feel a lot less tired then yesterday and the days/week before (then I was even too tired to keep my eyes open) and also my legs feel a bit better. I can sometimes walk a bit a couple of meters again, although I still need the wheelchair a lot in the house. But also this will hopefully improve the coming few days. I do have to remark that also after a B12-shot I keep having a bad feeling in my legs and also the tingling stays, but all this is then less severe! A week before my next B12-shot I ache for B12 and I HAVE to eat egg each day.
Considering the course after a B12-shot I think that I should have a shot at least once a week to hold back the symptoms.
According to my reaction to B12 and the symptoms I also suspect that I have pernicious anaemia (PA), although I never had a Schillingtest because my gp thinks that is not necessary... for him it's clear that my body doesn't absorb B12 from the food.
I have found a Dutch site with a lot of information about PA and according to him I had too long a B12-deficiency and this caused permanent damage to my nerves. This explains for me the tingling in my legs and the feeling that I don't feel my legs very well and due to this I don't have total control about them. Because of the site I remembered that around my 12-13th year I already have had a B12-treatment, because my B12 was too low. I did get for 5 days daily a B12-shot, however they haven't controlled it anymore after that. And so this is where it probably went wrong and so I probably have build up a severe deficiency till they finally rediscovered it in 1998 or 1999 (around my 27th), my B12 was by then nearly nihil. I first had daily 1 or 2 injections for 7 days (I am not sure, because I then was too often unconscious). So probably I had a B12-deficiet for years which in those years has caused permanent damage. This also explains my tummy/bowel-problems which I already had at the age of 13.
I suspect that next to PA I still have me/cfids and fm, because I still have other symptoms which can not be explained by a B12-deficiency.
(addition: in 2004 I saw in the papers of a hospital-admittance in 1999 that my ovary(/ies?) were inflamed as I were hospitalized with age 13 and so that will probably have been the cause for my tummy/bowel-problems.)

Next

Sitemap