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11/28/2003: Yesterday I had a phone-call with dr.Tisscher about the vitamin B12. My gp has admitted to prescribe me the B12 if he has black on white on paper that dr.Tisscher does approve it and so dr.Tisscher will write a nice letter to my gp.
Dr.Tisscher asked me how it went and so I told him I was again bedridden for 24 hours a day. He asked me how this was possible and I told him that I suspect it is due to:
1) probably having done too much in the summer as I was a bit better
2) I then also haven't followed my diet correctly
3) the cold and the moist of the autumn and winter
4) the stress and frustration from the health insurance (see 'Journal - 2003 - October till November part 1 and part 2')
He asked me what I use of painkillers. This is 3 tramadol a day that is just about bearable, but that I still don't sleep well and can't move due to the pain. Due to the pain I have to turn in bed every 15 minutes - half hour and each time I am awake again... this of course is not a real good quality of sleep. It is also the pain and through this the stiffness which prevents me from walking a bit or e-mailing and stuff. Surprised dr.Tisscher asked me if I didn't use any morphine yet. No my gp is fierce against it, because he thinks morphine is only for terminal ill patients during their last few days/weeks. Dr.Tisscher immediately said he would write a nice letter to me gp with the notification that he must prescribe me morphine. My morphine-level is drastically low (endorphins were about 2,4 I don't know what a normal level is) and this should be the cause that tramadol and other painkillers don't do much for me. I wonder if my gp is glad with the letter. Anyway I get morphine; that is I first have to see it before I believe it, I know that by now from previous experiences. I just hope that it will help me forward... a lot of pain costs a lot of energy, you sleep not very well and so you are even more exhausted and you sit in a downward cycle. As of when I have the morphine and how about declining the tramadol I don't know that, but you will read it here in due course.
12/24/2003: I have had a phone-consult with my gp after I had heard from dr.Tisscher that he had sent a fax past Monday to my gp. Without any problem I got 3 boxes of B12-ampoules, so that went well.
In that fax dr.Tisscher also mentioned about a blood test he wanted to be done, I didn't know anything about this but what the heck. Apparently he wants my gp to test my blood for lactate and pyruvate. First if I use B12-shots every 5-10 days for a while and later on again, but then I have to do without a B12-shot as long as possible. If the complaints are too heavy to bear, then there must again be tested on lactate and pyruvate and only after that I can have a B12-shot again.
Dr.Tisscher suspects that th is is where something goes wrong with me, because another patient of him reacts the same to B12 as I am. She appeared to have this disability which means that your body makes lactic acid too fast and this causes the pain, muscle weakness, muscle spasms and bad coordination of your muscles. I don't know if you can do something against it. Anyway my gp never heard of this disability and he also didn't know if, how and where to ask for this blood test. He will find out, but due to the holidays it will be January when I hear more of it.
Then I asked how he thought about the morphine which dr.Tisscher prescribed. My gp didn't know anything about it, because it apparently wasn't mentioned in the fax. As I explained him what dr.Tisscher told me, he didn't really reacted to it. I think he first wants to see this on paper and so I have to try to reach dr.Tisscher again to ask him what about the morphine and if he will write this in a letter to my gp.
Will be followed... Next
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