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I have had some visitors on Sunday 17 March for the first time since 12-22-2001; grandpa has been on a visit. My parents also came that day, because 'grandpa' would like to meet my parents. Actually I was too sick for visitors, but the appointment was made so long ago that I haven’t cancelled it. My parents and grandpa noticed that I wasn’t doing well as they came in so they talked to each other so that I had to speak minimal. Yet I got an epileptic seizure within the hour and this time I also had breathing problems. I then can’t breathe and am actually suffocating, of course my body takes a breath at some times otherwise I wasn’t here anymore. This happens several times in a row, I know that I have to take a breath but I am not able to, my body refuses to listen to me. I have this frequently, but I still find it frightening… of all symptoms I find this one the worst.
My grandpa has been terribly scared of this and totally as I also started to suffocate, so he went home quickly. I don’t bear a grudge to him. As we (Henk, my parents and I) witnessed this the first time we also were scared. But grandpa feels guilty because he has left.
Henk and my parents stayed calm, they had witnessed this more often and know that they only can wait till the seizure is over and I come around a bit. Grandpa now understands my disease better and knows now that it’s not just being tired. But it’s a pity that it had to be in this way. The good man really was terribly scared and he hasn’t felt okay for days.
(You can read who my 'grandpa' is at 'Boat trip with The Red Cross - day 5' - down below.)
 
Thursday 21 March I have started with the medicinal cannabis tea. If I drink the tea with little zips and take a long time for it (1-1,5 hours) then I can manage it. The first time I drank 100ml, immediately after 2 tiny zips I got a headache above my eyes, got more nauseous and I saw as if everything was far away. I finished the tea anyhow. That first night I have slept well, unfortunately this was a coincidence cause after that I hardly have slept at all. The next day I drank 150ml, I did get the same complaints but now less heavy. Since Saturday 23 March I drink 200ml tea before going to sleep. I still have the same complaints, but much less so I suspect that they are side affects. The normal dosage to start is 200ml a day.
I can name 1 positive thing since I drink medicinal cannabis tea… I am more hungry and so I eat more and better. I find it a pity that I can’t weigh myself, because now I can’t say how much I gain weight. It can take up to 6 weeks or even longer before you notice something from the medicinal cannabis, so I can’t tell you anything about what it does for my pain… at last this is why I use it. I am glad that I thanks to domperidon and medicinal cannabis can eat again. It’s a pity that I start drinking medicinal cannabis tea at the same time as I started with a diet. It is now harder to tell through what I have become better later on (hopefully). I have a diet because I appear to be allergic to 40 kinds of food. So the diet I follow is leaving out the food allergies and a rotation diet of minimum 4 days. You can read more about this at ‘Dr. van Montfort - part 3 and part 4’.

Besides I have decided that I will not go to the hospital for the splint even though the ambulance can be arranged. I don’t want to go through this misery again, maybe later someday when I hopefully am a bit better.
 
I now use the medicinal cannabis for something over 3 weeks, it’s now Saturday 13 April and till now I don’t feel any improvement as for less pain. The complaints, which I have mentioned before are all gone so this will probably have been side affects. Thanks to the domperidon and the medicinal cannabis I now eat almost normal, but still small portions because else it’s too much. I eat now when I am awake 1 slice of bread (without yeast or lactose), around 17.00 hours meat and vegetables (no rice or so, because that’s too much for me), in the evening a dessert and eventually a snack later on. Of course all this strict to the diet. So this is a great improvement if you consider that before this I have lived at least 1 year on 4 bites of meat with vegetables!

Yesterday, 25 April, I have forgotten my medicinal cannabis tea and I think that I have noticed this…
I had a lot more and severe muscle spasms, this has not to be the cause because I have often a day that I have more spasms but I think it’s very coincidence. It also took a while before I fell asleep. I only then noticed that I actually don’t have this burden anymore for some weeks now. Since some weeks I even fall immediately asleep after listening to spoken books (audio tapes?) and I sleep almost straight-ahead till the next morning… what a pleasure!!!
Considering the above I suspect that the medicinal cannabis has a positive effect on my sleep behavior and muscle spasms! Of course also on my eating, because since then I eat much better… I still don’t eat the normal amount, but it goes the right direction. Unfortunately it still has no effect on my nerve pains (neuralgic pain), but I have heard that it can take 6 to 8 weeks before you notice something. I also got the advice to boil the tea with a bit butter or oil (olive oil for example). This intensifies the effect of the cannabis.

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