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I started on Thursday 21 March with medicinal cannabis tea so I use it now for about 5 weeks with 200ml a day before sleeping time. Drinking the tea is getting better; I don’t have to take little zips anymore, I don’t get a headache anymore, I don’t get sick anymore and I don’t see weird anymore after drinking the tea. So it appears that it is going okay with the medicinal cannabis and so I will keep trying for a while. First we now will boil the tea with some oil and then we will see.

It’s now Saturday 18 May and I have a small problem; I have some medicinal cannabis left for tonight and tomorrow night… after that I don’t have no more. We have ordered some past Monday, but we still haven’t received it yet. Normally you have it the next day or the day after, but not this time… why?
Actually I wanted to double the dosage to 2x200 ml, but now I have to postpone it till I have received the new cannabis. Luckily I heard from a tip of a friend to double the amount of water; the oil or butter intensifies the working of cannabis and if you add more water the working is back to about normal again, but you have more. We hope to stretch it this way till Tuesday/Wednesday.

Since Thursday I am actually doing real well, who knows is the diet and the EPD-treatment (see 'Dr. van Montfort') finally working. The nice weather will also help. I hope that this will continue.
Past Wednesday I had a really bad day… actually it was my own fault. Normally I stand up around 13.00 hours, but this day I was already awake at 12. 15 hours because I had to go to the toilet. Apparently Henk was gone; he must have thought ‘she still is asleep so I can do quickly some groceries’… bad luck for me. The toilet-chair was downstairs, the diapers were not within reach and I didn’t want to shit in the bed so I let myself fall out of bed and shove on my ass to the toilet. Given the fact that I absolutely don’t have any strength in my legs I did it as follows; I sit with my back towards the toilet on my ass and push myself with my arms backwards, it’s about 4 to 5 meters. Reaching the toilet I already shake heavily all over my body, feel nicely sick and am out of breath due to the exertion, but I still have to see how I will get on the toilet seat. With extreme physical effort of my arms I am able to sit finally on the toilet seat and do my need. And then the phone rings… luckily I was so smart to take it with me. It was my mother and she asked me why I sounded so bad and was so out of breath, so I explained her that Henk wasn’t home but that I really had to go to the toilet and so I had shoved myself to the toilet. My mom was angry that I hadn’t called Henk that he had to come home or my help. Well, I still find it very difficult after all those years to ask for help and to bother someone else. Mom hangs up the phone and calls Henk that he has to go home immediately. Meanwhile I am finished but so tired that I don’t know anymore how the hell to sit or get of the toilet… luckily I have handles where I can hang over. Henk hurries home, runs cursing upstairs ‘why the hell I haven’t called him and why I have done this’ and he helps me of the toilet seat. There had been about 15 to 20 minutes between my departure from the bed to the toilet and the arrival of Henk. Because I now was sitting in my wheelchair anyway I let Henk put me on the stairs elevator, so that I could lay in bed in the living room. I barely lay down in bed and I feel an epileptic seizure coming. Henk quickly gives me a rivotril, but the seizure still perseveres… luckily less heavy. Due to paralysis after the seizure I wasn’t able to eat or speak from 12.50 hours till 22.00 hours... see also this cute picture.
Against all expectations I felt okay the next day. And till now I still feel better then I have felt the past months. Okay, today is a bit less, but it’s still better! Who knows…
 
Tonight, Wednesday 22 May, I will update my site that’s why I write here the latest updates. What I have told above here that it goes well unfortunately wasn’t for long. It appeared to be a few ‘good’ days. But at least I now have once in a while ‘good’ days; I haven’t had them for a long time so this still means a little improvement. Because I can’t remember the tiredness of the past months I can’t tell if I am now less – more or the same tired.
 
Today I have luckily received the medicinal cannabis and this is just in time because I am out. It appears that the package is lost and so the foundation has sent me a new one. Probably someone of the post had noticed that there was marijuana in the package and now he is trying getting high.
Because I now have enough cannabis I will start today with 2x200ml cannabis tea. So when I am up 200ml and before I go to bed 200ml. I hope that this will have some effect on the pain, if not I stop for a while to see how I am doing then.
The pain normally is tolerable with the tramadol and diclofenac, but I often have peaks which sometimes last for only a few hours but often also a few weeks and at those times the medication is too less. But for now I try 2x200ml medicinal cannabis tea and if this still doesn’t work I want to go to a polyclinic specialized in pain.

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