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You know what I don’t understand… that once in a while I forget my meds at night at 03.00 hours. Each time I turn of the alarm, but I don’t take my meds… I forget them with my sleepy head. The result is every time again that I wake up with terrible pain a few hours later and I then realise that I again have forgotten my meds. Every time it takes at least one hour before the pain is somewhat tolerable again, so that I then finally can fall asleep again. Because of this it’s very clear that I really need 3 tramadols a day and certainly not less.

The past weeks it goes really bad with me. Those attacks of that weird feeling come each time more often and I also have had an epileptic seizure again which was totally unexpected. I was watching TV in the living room as someone came for Henk, but I was too sick for this and I really got terrible nauseous of the talking and so I asked Henk if he would bring me upstairs to my bedroom. I just sat in my wheelchair to be taking to the stair elevator as I suddenly did get an epileptic seizure so Henk gave me quickly a rivotril and brought me upstairs. Luckily the seizure wasn’t so severe, but I still have had again some hours of exhaustion and paralysis upstairs.

Last Saturday, 15 June I had a really severe attack of that weird feeling and I have been sleeping for hours or I have been unconsciousness. In between I each time had the feeling that I couldn’t move or talk anymore and as I recovered it appeared that I really couldn’t do this. This was very frightening, because it felt as if I absolutely didn’t know anymore how to do something; I didn’t know how to move my arms or legs, but I also didn’t know how to speak. Right before that attack started I saw a white milky mist with my left eye and somewhat later I had no feeling anymore in my left side of my head (I am not sure if this was also with my left side of my body). Somewhat later I fell unconscious or asleep and I heard except for the noises outside or Henk also music, voices and drum rolls in my head… am I loosing my mind?

Henk called our gp on Monday and he came by that afternoon. 
For his migraine Henk uses maxalt melt and the gp suggested that I take a half of it with the next attack. This to see if the time span of the attack will become less.
Yesterday, 19 June I again got such an attack and so Henk gave me a half maxalt melt and 5-10 minutes later that attack was gone!!! I even felt less tired!!!
I have told this my gp today and he said that those attacks then probably anyhow will be some kind of migraine. He had suspected that it could be migraine, but because my attacks differ from the normal migraine pattern he wasn’t sure. But well, he said, nothing is normal with you due to ME.
I now have to take a half maxalt each time I feel a attack coming just to see if it each time does the same or that it maybe was a coincidence. If it keeps working we will check how often I have an attack (currently 1-2 per week) to decide which medication I have to use. If I have too often an attack, then medication that prohibits a migraine attack is a better solution. 
So it looks like we know what those attacks of weird feeling are and maybe we even have something that stops such an attack!
Now just hoping that I quickly will get a bit better, because as it went the past weeks I was afraid that I had to stop with my site.

Past Friday, 21 June I again had that weird feeling. As I felt it coming I immediately took a half maxalt from Henk, but this time it didn’t work or at least not enough because the weird feeling stayed. Maybe it would have been more severe if I hadn’t taken that maxalt. So now the maxalt has helped once and one time it hasn’t helped or too less. I am curious what it will do next time.

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