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Last Tuesday, 25 June I again had that attack with that weird feeling. Henk gave me a half maxalt and 10 minutes later it was gone. The whole day and the next day I still felt a bit weird, but compared to such an attack was this nothing.
I think that last time the maxalt didn’t help, because I have waited too long taking it. I do this more often; that I wait too long with taking medication and by then it doesn’t do anything anymore or just a little bit. So the next time I shouldn’t wait too long anymore. If it then helps again I think that it was each time a migraine-attack, because maxalt only helps with migraine.

I am very angry. Maybe you remember that some time ago I have asked for more nursing hours. Well today, 28 June I got a letter and it says that instead of more hours I even get less hours! They assured me that I get 22 hours of help (7 hours nursing and 15 hours housekeeping) each week till May 2003. This becomes immediately 13.7! hours a week (6.25 hours nursing and 7.45 hours housekeeping). That’s 8.3! hours less than it was!!!
I am now really terribly pissed-off and I have cried a lot and often today just because of frustration. I actually wanted to stay upstairs, I am much too tired to go downstairs, but I wanted to be washed and then I find it nicer when my help does this when I am laying on my hospital bed so that she doesn’t have to bent each time (she has a hernia). So I went downstairs and there Henk had put the letter ready so that I could read it… well I really was astonished of what I read. Of course we will protest against it, but I really don’t look forward to it – I am so awfully exhausted – it is just not nice anymore. Why does everything has to go with this kind of troubles? Why can’t it ever be without any problems? If I am right we are in our right, because I have on paper that I will get 22 hours of help each week till May 2003 (it’s in a letter from 2001) and so they can’t deduct hours just when they want to while I have asked for more hours.
Because of energy-lack I preferred to do nothing, but I can’t just let it be… this isn’t normal anymore! They say that I have to follow rehabilitation and that I have to undue myself from my cats etc.!!! 

07/04/2002: Since Saturday 29 June I have daily such a weird feeling. Then maxalt helps enough and then it doesn't - it becomes less, but it isn't gone. Maybe I have those attacks now daily due to the stress and frustration of getting less help. But we even though called our gp. We have agreed that I will watch it for another week, because it can be due to the stress. If I still have those attacks daily in the beginning of next week, then we will try migraine medicines for daily usage to prevent an attack. This because in such case it isn't good to take daily maxalt.

07/10/2002: Today I have started with a new medicine which is called Selokeen ZOC 50mg. I have to take this daily 1 tablet. The dosage is real light, but we have done this on purpose because I often react heavily on a small dosage. This medicine is being used a lot with (almost) daily migraine attacks. It will take about 2 weeks before it starts working, till that time I luckily can keep taking maxalt if necessary. 

08/10/2002: The selokeen helped me very quickly, because just after a few days I didn't need maxalt anymore. Since the crisis I don't take selokeen at all anymore. First of all because I couldn't swallow anymore and since I have improved a bit again it appears as if I don't have those weird feelings anymore...? I also was forced to stop with the medicinal cannabis, because I also couldn't drink/swallow this anymore. Now I don't need it anymore now that I am doing a bit better again.
You can read at 'Dr. Tisscher' what has happened the past month and because of what I am doing better now. Because I don't use medicinal cannabis anymore this chapter is closed.

01/29/2004: This part is now re-opened due to the fact I am trying durogesic patches... just click on next here below.

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